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Hi,
my name is Allison Olivia Joyner and I have Rett
Syndrome.
Rett
Syndrome is a neurological disorder that occurs predominently
in females (male
cases are very rare and are usually fatal).
I appeared to be developing normally until I was about
18 months old. I walked, began talking and did many other
things that most babies do. I really enjoyed books. Then
I began to regress. I stopped saying the words I knew
and didn't care to play with my toys. I can still walk and and
I try to talk. My family does recognize some of the things
I say. They also say I do a lot of talking with my eyes
and facial expressions and they do understand my wants and needs.
You see, my family takes wonderful care of me and they love
me very very much. The doctors told my mom and dad that I could
have many different things, but they really were not sure.
It was in March of 2002 that I was diagnosed with Rett
Syndrome. I know it was hard on my family, but they
told me everything would be okay and that they would take care
of me.
I was born on October 10, 1995, which makes me 7 years old.
I live in North Carolina with my mom and step-dad (Judy and
Larry) and my sister Sarah, step-brother Jarrett and step-sister
Ashley.
I spend lots of time with my dad and step-mom (Chuck and Susan).
I am surrounded by lots of love everywhere I go.
I go to Belmont Elementary School where I am in a class with
other special kids and have the best teachers anyone could ask
for. They work really hard with me and help me to learn
new things everyday. I love all my teachers very much
and thank them for helping me to learn, having patience and
understanding. I like to watch Barney, Arthur, Clifford
and many other programs (my sisters and brother watch my shows
with me, but I think they're a little to old for them).
I enjoy playing in the pool, taking walks, playing outside and
cuddling when I am tired. I have a collie dog named Cheyanne.
Cheyanne has so much patience with me. She
lets me pull her hair and sit on her. She likes to get
in my bed with me, but my mom doesn't care to much for that.
I hope that one day they will find a cure for this terrible
thing called Rett
Syndrome. I don't want anymore kids to go through
what me and so many others are going through. I am glad
you stopped by to visit with me and please come again. Tell
all your friends about me and help spread the word about Rett
Syndrome.
Hugs
and kisses to all!!
Love, Allison Olivia
For
more pictures and my special poem click the next button below
please
be sure to sign my guestbook so I will know that you visited
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