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WrightsLaw |
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A Guide to the Individualized Education Program |
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Rett Syndrome Parent |
Category: Clothing [Clothing] (5) | Adrian''s Closet | Referrals: 769 |
| Great place for clothing. Their rain poncho''s are wonderful!!! | |
| Easy Access Clothing | Referrals: 736 |
| Adaptive clothing. | |
| Janska Clothing that Comforts | Referrals: 689 |
| We offer polar fleece clothing intended to offer warm, colorful, easy-on, and stylish garments for aging parents and elders and to make life easier for their caregivers. | |
| Northwest Rett Syndrome Association | Referrals: 713 |
| Founded in 1986 by a group of parents and professionals who recognized the need for a strong regional support group in the Northwest. | |
| Rolli Moden | Referrals: 710 |
| Adaptive clothing for wheelchair users. | |
Category: Communication [Communication] (3) | Family Village | Referrals: 607 |
| A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. | |
| International Society for Augmentative and Alternative Communication (ISAAC) | Referrals: 746 |
| The Mission of ISAAC is to promote the best possible communication for people with complex communication needs. | |
| LeapPad Learning System | Referrals: 625 |
| This award-winning educational product introduces children to the magic of books and reading. LeapPad® interactive books and cartridges deliver activities that develop vocabulary, spelling, and phonics awareness. | |
Category: Daily Living Products [Daily Living Products] (2) | College Loan | Referrals: 613 |
| Excellent and very informative. | |
| The Caregivers Marketplace | Referrals: 699 |
| The Caregivers Marketplace is the nation's first free Cash Back and Discount service for everyone who gives, gets and needs care. | |
Category: Education [Education] (6) | A Guide to the Individualized Education Program | Referrals: 2371 |
| This guide explains the IEP process. | |
| ERIC or Educational Resources Information Center | Referrals: 645 |
| ERIC EC gathers and disseminates the professional literature, information, and resources on the education and development of individuals of all ages who have disabilities and/or who are gifted. | |
| Individual Education Planning | Referrals: 686 |
| Great resource site for links to help in planning or problems with IEP''s. | |
| Parent Pals | Referrals: 672 |
| Welcome to Parentpals.com Special Education Guide, a special education community where parents and professionals share information and offer support. | |
| Reed Martin / Special Education Law & Advocacy Strategies | Referrals: 689 |
| Our Mission is Lessening Discrimination Against Children with Disabilities by Providing Parents and School Personnel Tools for Advocacy | |
| WrightsLaw | Referrals: 2335 |
| Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about advocacy for children with disabilities. | |
Category: Genetics [Genetics] (4) | bio-technology | Referrals: 665 |
| learn more about biotechnology | |
| National Center for Biotechnology Information | Referrals: 682 |
| Clinical studies of MECP2 and their results. | |
| Rett Syndrome | Referrals: 692 |
| Great article, that goes in depth on Rett Syndrome. Written by: Vicky L Brandt and Huda Y Zoghbi, MD. | |
| What does MECP2 do? | Referrals: 631 |
| Gives a detailed description of what MECP2 does. | |
Category: Legal [Legal] (3) | I Can! | Referrals: 610 |
| Lots of information for estate planning. | |
| National Guardianship Assocaiation | Referrals: 632 |
| Networking with members in the United States, Canada and Australia, the NGA network provides members the opportunity to interact with individuals who share the same interest in guardianship issues. | |
| NOLO Law For All | Referrals: 620 |
| Great link for all types of law. Wonderful section on Estate Laws. | |
Category: Medical & Dental References [Medical & Dental References] (4) | American Academey of Pediatric Dentistry | Referrals: 684 |
| Dental Care for the Special Child. An educational resource for parents and caretakers of children with special needs. | |
| Oral Conditions in Children with Special Needs | Referrals: 669 |
| A guide for health care providers. | |
| The Blue Bird Clinic - Houston, Texas | Referrals: 639 |
| The Rett Syndrome Center of Baylor College of Medicine and the Texas Children''s Hospital is one of the largest Rett Centers in the World. | |
| UAB Sparks Clinics Rett Syndrome Research Program | Referrals: 687 |
| Welcome to the UAB Sparks Clinics Rett Syndrome Research web site. Here you will find detailed information about Rett Syndrome along with links to research, clinic appointments, and international online resources related to Rett Syndrome. | |
Category: Medical Reference Libraries [Medical Reference Libraries] (2) | US National Library of Medicine | Referrals: 627 |
| Welcome to the worlds largest medical library and creator of MEDLINE/PubMed. | |
| Web MD-Prescription Drug Refetence | Referrals: 640 |
| Get information about any medications here. | |
Category: Other [Other] (2) | rettlatinoamerica | Referrals: 670 |
| Rett support in spanish language. Grupo de ayuda en espa?ol. | |
| RettSaver | Referrals: 170 |
| Rett Girls screensaver | |
Category: Recreation [Recreation] (9) | Abilitations | Referrals: 679 |
| *Designed for kids and adults who love the water! | |
| Convert-O Bike | Referrals: 660 |
| Tricycles and Whirl-O wheels for people with special needs. | |
| My Pool Pal | Referrals: 641 |
| Great source for swimwear and swim diapers for special needs. | |
| Natural Access | Referrals: 645 |
| All-terrain and beach wheelchairs | |
| Special Clothes -- Adult | Referrals: 700 |
| Swimwear and swim diapers for special needs adults. | |
| Special Clothes -- Children | Referrals: 724 |
| Swimsuits and swim diapers for special needs children. | |
| Swim Diapers | Referrals: 703 |
| Swim diapers for special needs adults & children. | |
| UR-In-Control | Referrals: 707 |
| Adult swim diapers. | |
| Wike Special Needs Trailer for Bikes | Referrals: 666 |
| Trailor for bikes. Holds up to 150lbs. | |
Category: Rett Related [Rett Related] (4) | Heavenly Chocolates | Referrals: 650 |
| Walnut or Almond Butter Crunch $25.50/lb. For each lb. sold by IRSA membership $12.00 will be donated to IRSA. | |
| IRSA | Referrals: 656 |
| Order your Rett Syndrome bumper stickers and lapel pins here. | |
| IRSA's Phantom Tea Annual October Event | Referrals: 634 |
| A great event and a way for all of us to participate in fundraising for our Rett Angels!!! | |
| The Sarah Varon Foundation for Rett Research | Referrals: 679 |
| The purpose of The Sarah Varon Foundation for Rett Research is to create awareness and raise funds to find the cure for Rett. | |
Category: Show-Off Your Homepages [Show-Off Your Homepages] (12) | Anne Our Angel | Referrals: 810 |
| Don''t forget to sign the guest book. Learn a little about Anne''s Story here! | |
| Buckle's & Bows | Referrals: 776 |
| Just a bit of Everything.. Rett, Coreena .. our life in New Zealand | |
| Jonna...Our Silent Angel | Referrals: 832 |
| A special place for Jonna and thoughts of angels. | |
| Kelsey | Referrals: 763 |
| Pictures of Kelsey and her family. | |
| Kimberly's Korner | Referrals: 683 |
| Check it out.. be sure to sign guestbook | |
| Phil's Place | Referrals: 691 |
| A Rett Dads Personal Web Page | |
| Rene's Room | Referrals: 771 |
| A Rett Moms Personal Web Site | |
| Rett Syndrome Parent | Referrals: 2685 |
| Rett Links | |
| Staceys life story | Referrals: 737 |
| A brief account of Staceys life story. From birth to the present day. | |
| Touched By An Angel | Referrals: 677 |
| A site with information and links and photo''s! | |
| Website of Angel Renee | Referrals: 703 |
| please be sure to click on to Renee''s photo albums & sign her guestbook! | |
| Willemijn a dutch rett angel | Referrals: 779 |
| Willemijn a dutch rett angel | |
Category: Sounds / Music / Audio [Sounds / Music / Audio] (1) | Assorted Midi files | Referrals: 786 |
| Most of the Music used on the Angels Calendar | |
Category: Sponsers [Sponsers] (2) | My Silent Angel | Referrals: 633 |
| This group is intended for the parents, family, friends, caregivers, etc., of children with Rett Syndrome. It''s intention is to be able to share any pictures, thoughts, words of encouragement or help for those affected by this disorder. | |
| WEB - FX | Referrals: 644 |
| Web site creation (Web content) - Special Effects for your web site, database intregration, etc | |
Category: Support & Resources [Support & Resources] (24) | Americans with Disabilites Act government site. | Referrals: 674 |
| For help in understanding the legal rights of the disabled. The ADA also makes sure that the laws are enforced. | |
| Australian Rett Syndrome Study Website! | Referrals: 653 |
| The Australian Rett Syndrome Study was established in 1993 to set up a facility for population based research in Australia. | |
| ClubRett | Referrals: 668 |
| Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about. (And we DO talk about anything) | |
| Disability Direct | Referrals: 694 |
| Created by the US Government to provide one-stop online access to resources, services, and information available throughout the Federal government. | |
| Exceptional Parent Magazine | Referrals: 607 |
| Technology, mobility, healthcare, sports and recreation, learning disabilities, early intervention, organizations, and finance are the core topics covered extensively and often in EP magazine. | |
| Home and Community Based Service Waivers | Referrals: 630 |
| Information on Medicaid home and community-based service (HCBS) waivers. | |
| International Rett Syndrome Association | Referrals: 611 |
| The most comprehensive worldwide organization dedicated to Rett syndrome. It continues its important programs of: Information, Research, Support & Awarenss | |
| Internet Resource for Special Children | Referrals: 652 |
| Dedicated to children with disabilities and other health related disorders worldwide. Providing numerous categories and links, Online Communities - a place where you can ask questions or share information, access to recent news articles, and books. | |
| IRSA's RettNett | Referrals: 647 |
| The RettNet is a moderated forum for all interested persons; parents, teachers, relatives, therapists, doctors and friends who have an interest in Rett Syndrome. | |
| Medicaid | Referrals: 602 |
| The Official U.S. Government Site for People with Medicaid. | |
| Medicare | Referrals: 608 |
| The Official U.S. Government Site for People with Medicare | |
| Michigan-Rett Syndrome Access (Mi-RSA) | Referrals: 629 |
| We provide informational material to parents, schools, agencies and professionals that is relevant to the particular needs of our children in Michigan. | |
| Needy Meds | Referrals: 609 |
| Help with cost of prescription drugs for those who financially qualify. | |
| Ontario Rett Syndrome Association | Referrals: 640 |
| The Ontario Rett Syndrome Association exists to ensure that girls and women with Rett syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community. | |
| PACER Center | Referrals: 641 |
| The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families. | |
| Rett Syndrome Association UK | Referrals: 672 |
| A national organization giving help, advice and support to parents, carers, siblings and professionals, in fact anybody involved with a child or adult who has Rett Syndrome. | |
| rett syndrome club | Referrals: 644 |
| Like club rett,A place to ask questions and participate.. | |
| Rett Syndrome Europe | Referrals: 665 |
| It is dedicated to the support of such girls and women, their families and carers. | |
| Rett Syndrome Forum | Referrals: 824 |
| Rett Syndrome Forum. | |
| Rett Syndrome Information in Spanish | Referrals: 643 |
| Informaci?n del S?ndrome de Rett en Espa?ol | |
| Rett Syndrome Parents | Referrals: 554 |
| Like Club Rett and Rett Syndrome Club. Parents can ask questions and participate in suggestions and talk about Rett Syndrome. | |
| Rett Syndrome Research Foundation | Referrals: 542 |
| The Rett Syndrome Research Foundation''s mission is to fund, promote and accelerate biomedical research for the treatment and cure of Rett Syndrome. | |
| The Rett Syndrome Handbook | Referrals: 539 |
| This book covers all areas of Rett Syndrome with questions and answers on every topic you can think of. It is a priceless resource for families or caretakers of people with Rett Syndrome. | |
| US Dept. of Health & Human Services | Referrals: 537 |
| THE DEPARTMENT OF HEALTH AND HUMAN SERVICES is the United States government''s principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves. | |
Category: Toys [Toys] (5) | Able Net | Referrals: 605 |
| Whether you''re searching for a switch, a literacy kit or just something fun to do in the classroom, it''s all on our Web site or in our catalog. | |
| Enabling Devices | Referrals: 723 |
| Many innovative toys and switches. | |
| How to make your own switches!! | Referrals: 651 |
| Step by step instructions to make simple and affordable switches for toys. | |
| TFH Ltd. | Referrals: 627 |
| We present a line of unique, adapted toys and fun products for children and adults with special needs. | |
| Tidewater Center for Technology Access | Referrals: 654 |
| A non-profit organization comprised of professionals who provide individuals with disabilities access, support, and knowledge regarding technology to maximize independence and participation in all environments. | |
Category: Treatments , Therapies & Equipment [Treatments , Therapies & Equipment] (37) | Chest Physical Therapy | Referrals: 752 |
| Directions on how to perform Chest PT. | |
| Comfy Splints | Referrals: 661 |
| All types of splints. | |
| Constipation (General Discussion) | Referrals: 858 |
| Covers broad subject in great detail. Discusses symptoms and treatments. | |
| Dystonia Medical Research Foundation | Referrals: 599 |
| The mission of the Dystonia Medical Research Foundation is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. | |
| ElderCare Skin Builders | Referrals: 632 |
| Info on treating pressure sores. | |
| Epilepsy Foundation | Referrals: 646 |
| The Epilepsy Foundation is a national, charitable organization. Dedicated to the welfare of people with epilepsy, our mission is simple: to work for children and adults affected by seizures through research, education, advocacy and service. | |
| Family Doctor | Referrals: 885 |
| Provides a general overview on this pressure sores. | |
| Flag House | Referrals: 605 |
| Source for OT & PT supplies and adaptive toys. | |
| Fruit-eze | Referrals: 614 |
| Site to purchase this all natural laxative. | |
| Invacare | Referrals: 623 |
| Very reputable wheelchair manufacturer. They offer pediatric and adult wheelchairs. They also provide patient lifts and other types of very useful equipment. | |
| Joni and Friends | Referrals: 616 |
| Donate your used wheelchair! | |
| Medline Plus | Referrals: 744 |
| Information on pressure sores. | |
| MEDmarketplace.com | Referrals: 623 |
| Medical equipment Marketplace for new, used, medical equipment and related | |
| Milk of Magnesia | Referrals: 621 |
| Medline Plus information on Phillips Milk of Magnesia. Compreshensive information. | |
| Miralax information. | Referrals: 583 |
| Product site, has most of the needed information about Miralax. | |
| Mother''s Third Arm | Referrals: 652 |
| This is a device to hold a cup, toy, ect. that will mount almost anyhere you need it. Viki shared this with me. | |
| North American Riding for the Handicapped Association - NARHA.org | Referrals: 701 |
| Wonderful link about Hippo Therapy. Also has national list of service providers. | |
| Pediatric / Adolescent Gastroesophageal Reflux Association (PAGER) | Referrals: 607 |
| PAGER is a 501(c)(3) non-profit organization that provides information and support to parents, patients and doctors about Gastroesophageal Reflux (GER). | |
| Pedicraft Canopy Beds | Referrals: 757 |
| The CanopyTM Enclosed Bed offers a new alternative to traditional restraints and crib beds. It can give better range of motion to a patient who needs to be protected from falls or discouraged from getting out of bed unassisted. | |
| Power Pudding Recipe | Referrals: 820 |
| Recipe for Power Pudding. A natural laxative made from food products. | |
| Quickie Wheelchairs | Referrals: 557 |
| Very reputable wheelchair manufactuer. They offer pediatric and adult wheelchairs. They do also offer other types of equipment for the special needs community. | |
| Rehab Outlet | Referrals: 542 |
| Zipper Air Splints. Easy-to-fit URIAS? Pressure Splints provide therapeutic, even pressure on arms, legs, hands and feet when used for neurological rehabilitation. | |
| Sammons Preston | Referrals: 540 |
| You can purchase all of your special purpose products from the same trusted source as hospitals, nursing homes, and professional therapists - Sammons Preston Rolyan | |
| Scoliosis In Children and Adolescents | Referrals: 558 |
| Genereal information on scoliosis. | |
| Scoliosis World | Referrals: 573 |
| Scoliosis web directory with message board, chat and scoliosis related polls. | |
| Service Dogs-Located in Israel | Referrals: 558 |
| The Center for Service and Therapy Dogs has a skilled, experienced team, with wide knowledge in the field. | |
| Shriners Hospitals for Children | Referrals: 562 |
| Listing of hospitals along with the types of treatments they do. Also list eligibility requirements and admission procedures. | |
| Sleep Safe Bed | Referrals: 573 |
| New Revolutionary Adaptive Bed Meets or Exceeds Safety Standards with Classic Style! | |
| SouthPaw Enterprises | Referrals: 598 |
| Equipment, tools, and resources to help children with sensory integration dysfunction (DSI) and similar disorders learn to live in this fast-paced world. | |
| Span America | Referrals: 548 |
| Span-America Medical Systems offers the industry''s most comprehensive line of specialty solutions for pressure management and patient positioning. | |
| Special Child: Tips - G-Tube Tips | Referrals: 805 |
| G-tube tips from parents and caretakers. | |
| Sport Aid | Referrals: 549 |
| Cushions & bedding to prevent pressure sores. http://www.sportaid.com/page49.htm | |
| The Vest | Referrals: 557 |
| The Vest system is an easy-to-use airway clearance device for both children and adults. | |
| We Move | Referrals: 540 |
| Welcome to the WE MOVE? Web Site, the Internet''s most comprehensive resource for movement disorder information and the hub of movement disorder activities on the Web. | |
| What is gastroesophageal reflux? | Referrals: 580 |
| Information on Gastroesophageal Reflux Disease. | |
| What is Status Epilepticus? | Referrals: 557 |
| In depth look at Status Epilepticus. What it is, how to identify it and treatments. | |
| WheelchiarNet | Referrals: 582 |
| Great, great resource for info about anything wheelchair related. From traveling to home modifications. | |
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