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 I need some help to get my story out
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| Tiffany |  Sun Mar 09 2008, 06:16PM | |
| Registered Member #171
Joined: Mon Mar 03 2008, 06:18PM
posts: 2
| Hello, my name is Tiffany and I have a very unsual stroy for everyone. All the info you read on rett syndrome is about girls. they say that boys that are borne with it do not make it thru the first 24hrs or the pregnecie ends in miscariage. Well I want all of you to know that I am a mom on a merical. In Nov 2001 I was blessed with a baby boy he had a rock start and no one new why, we thought that we was going to be a healthy baby and once he turned six month old is when our journey began. After severl studies no one could tell us why he was having problem eating and why his muscels were not developing and so on and so on. Well on Jan 13, 2003 was the end of our lives. I woke up as always to get him up and he was not resopding. Taylor was gone.
Still we had no answers to why he was gone untill the day of his funurel we got a phone call from his dr and she told us that Baylor University kept studying his case and they found that he had Rett Syndrome. This is just a short version of his stroy, I would love to get some information on how to get his stroy out there and let people know about this miracel of a male who lived with rett syndrome for 13 months. Please any one who can give me information on how to relly get his stroy out email me. Thank you Tiffany Hickman
Tiffany Hickman | | Back to top | |
| SABRINA | | Sat Nov 01 2008, 01:12AM | |
| Registered Member #199
Joined: Sat Nov 01 2008, 12:31AM
posts: 1
| if you like to get the stroy out there you have to get you a myspace so meny rett syndrome pages on myspace just go to myspace.com its free i see that some of the rett kids on hear have one tha are on my pages this is my pages
PRAYERS FOR RETT SYNDROME
www.myspace.com/retangelsprayers www.myspace.com/sabrinamaynard14 SABRINA IS MY SISTER'S DAUGHTER
mary | | Back to top | |
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